Micro Preemie

Madison Premature with Dad's Hand

I am including this on a DIY/decorating blog because it is a huge part of my life, and maybe someone else will be able to relate.

Madison was born on September 13th, 2012. She was born premature at 24 weeks because I developed an incompetent cervix. I had to have an emergency C-section because she was breach, and I had developed a slow leak in her amniotic sac.  She was running out of fluid, and I had been dilated to 7cm for 3 days, so she started slipping out.  Crazy, right?

She was born at 2:44am and weighed 1lb 3.8ozs.  She was 12 1/2″ long. She spent 3 months in the NICU and although there were set backs(hernia, slight case of retinopathy in her right eye…) and lots of testing, she came home on Christmas Day.  Best Christmas present ever!  She weighed just a little over 5lbs.  They needed to stuff blankets around her so her legs wouldn’t slip through the straps of the car seat.

Due to her level of prematurity she has Chronic Lung Disease and was predicted to remain on oxygen until a heart surgery was performed at age 2.

We had to return to Duluth to see the Pediatric Ophthalmologist, Dr. Shuey, twice a week and then weekly to monitor her retinopathy.  The 2 hour trips, EACH way, were draining, but it’s her EYEs! Ya know?

She spent close to a month at Children’s Hospital in Minneapolis because of Respiratory Failure.  They kept her sedated and on a ventilator.  So Scary and heartbreaking to see.  Makes me cry just writing about and remembering it.

As of October 2015, she has been off the oxygen for 6 months, and only uses it at night and during naps. The Doctors have decided to wait until she is 4 to attempt the heart repair.  The hole is staying the same size(~8mm), while her heart and lungs continue to develop naturally.

This is her on her 3rd Birthday, at her first day of school, and on her bike :

Birthday schoolchz

Madison on her Bike She has, basically, been sick almost everyday since we visited her Pre-school for the Open House, which is stressful, but is to be expected, and the Doctor says it is helping to build her immune system.

She has come so far!

If you are interested  in more details or want to see more pictures I created a Caring Bridge Website for her  chronicling everything.

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